Shame on You, Eyes!

For some reason the quote from the movie, Clifford with Martin Short keeps coming to my mind for a title for this post. You will see why.

Last Saturday I had an eye appointment to get my eyes checked as I have been doing every two years since I was 12. I have always had a lot of problems with my eyes but with some very good glasses that correct a pretty severe astigmatism I manage pretty well as long as my glasses are on.

The last year or so my eyes have been having other problems that I have mostly been ignoring. One is blurry vision in the morning. The other is driving at night. It has become next to impossible. Car and street lights are like looking into dozens of spotlights.  I thought it was just as age thing. Apparently not. The optometrist diagnosed me with a rare eye disease called Fuchs Corneal Dystrophy. Never heard of it? Neither had I. There is no way to slow the process and it eventually leads to blindness. The only treatment will be a cornea transplant. At this point there is no way to say how fast this will happen. It can happen over a few months or it can take years. It is genetic, and I am guessing my mom had it and didn’t know because she had a terrible time with driving at night. There is a 50% chance each of my kids will have it.

So that is kinda scary. No. It is a lot scary. Losing my sight is one of my biggest fears. I have found a support group online and they have put my mind at east but it is still disconcerting.

In other news, I had my pre-admin appointment for my hysterectomy today. My surgery is on January 4th and I can’t life anything over 10 pounds for 6 weeks. That means I can’t pick up Norbert because he is well over 10 pounds. I bet he is glad.



14 thoughts on “Shame on You, Eyes!

  1. I am so sorry about your eyes and glad to hear you have some support. Please find a good corneal specialist…I hope your Christmas is wonderful…you deserve so much more than this. Hugs.

  2. Ah Jeez. Because you need MORE TO WORRY ABOUT! But please do get a corneal specialist and try not to worry.
    I am certain that Norbert is beside himself with grief that you will not be able to pick him up for six weeks.

  3. What the –?! That is just crazy. I knew you were special, but never expected you to have some crazy special disease of the eyeball to boot! I hope you find a good doctor and good corneas (?) I know nothing about this but I hope it all works out the best way possible. I’m sorry to hear this landed on your doorstep Birdie.

    Enjoy the holidays and cuddling* Norbert while you can, hope Christmas in great and a fun last hurrah before surgery 🙂

    Thinking of you.

  4. I’m so sorry to hear this. I, too, have an eye disease that slowly diminishes sight and has no cure. I get injections in my eye that we hope will slow the process of leakage from the vessels in my eyes which obstructs my sight. How rare is a cornea transplant? I hope that is something that will work for you when you need it.
    So glad that your surgery is not far away. I hope your Christmas is happy and filled with love and peace.

  5. The good thing is corneal transplants are highly successful. My mum had a rare eye disease that caused her to go blind before she died, genetic as well. So I keep an eye on it myself. Punny eh?

    Hope your surgery goes well and Merry Christmas.

  6. There are times in Life when the phrase “I want my money back!” comes to mind. My sister has a degenerative eye thing that first started in her teens. She’s now legally blind. The reason I mention this is to say that I’ve taken note of the Eye Doctor world for a long time. First and foremost, it is the branch of medicine with the most and fastest progress and innovation of treatment. Eye Surgeons get a lot of practice and miracles are happening. In my sister’s case, our relationship prevents me from sharing with her that there are trials testing the implantation of cameras that send pictures to the optic nerve. Specific to her problem. I’m not allowed to interfere in something she considers her own specialty, although her knowledge is twenty years out of date. I have carried the brochure around for a couple of years now in the hope I can help her one day.

  7. I am so sorry to hear about your eyes Birdie. I have great fears about my eyesight. I have to have cataract surgery on 1/14, which is nothing like you face. I would look into a corneal surgeon right away so you can start following this immediately. I’m glad about your surgery on the 4th but not about Norbert. I wish you the merriest of Christmases. You so deserve it.

  8. Oh shit 😦 the last thing you need.

    Like you said things can progress fast or slow … Let’s focus on your surgery first and get healed from that, then we deal with your eyes.

    Hugs tight. (I wish I could come take care of you after surgery. I’d pick that grumpy cat up and put him on your lap even if he skinned me on the way).

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